Silvia Corradin Quotes

#1. The bottom line is that there are very few families who have a family member with a catastrophic medical condition such as RDEB that can survive financially without help.

Silvia Corradin

#2. My role as an advocate for Epidermolysis Bullosa related issues, my key responsibility, were to inform, educate, and promote understanding of what we go through as individuals and as a community.

Silvia Corradin

#3. I accepted the child, but I did not accept this monster called Epidermolysis Bullosa, and I would move heaven and earth in order to effect change.

Silvia Corradin

#4. There was no cure for Recessive Dystrophic Epidermolysis Bullosa, there was also no known treatment, and no drug that improved the condition, not even an injection or medication to give him weekly or daily that would ease the symptoms. Absolutely nothing, zero, zilch.

Silvia Corradin

#5. This entire ordeal taught me a valuable lesson. People are important-not things. I was no longer keeping up with the Joneses, material things or lots of money; that mattered very little to me. Life isn't about having, is about being.

Silvia Corradin

#6. His itching caused ninety percent of his wounds; hence to us it was vital to overwrap to create that very important padding to prevent him from hurting himself.

Silvia Corradin

#7. We judge and it's wrong. It's just wrong. We know nothing about this person, nothing. What this trip to the Welfare office taught me is that.

Silvia Corradin